NPF launches the nation’s largest pancreatic disease patient registry at the Digestive Disease Week 2022 Conference
The National Pancreas Foundation (“NPF”), a nonprofit organization that provides hope for those suffering from pancreatitis and pancreatic cancer, announced today at Digestive Disease Week 2022 in San Diego, the launch of the country’s largest, most inclusive pancreatic disease patient registry powered by SeqsterOS. The patient-centric registry gives patients and their caregivers the ability to create their longitudinal patient records with real-time data from any EHR, genomic DNA test, and wearable/remote monitoring device.
“We are so thrilled to provide the exciting capabilities of SeqsterOS for Patient Registries and Clinical Studies to our patients as well as to researchers who wish to better understand pancreatic disease and develop therapies faster,” said Chief Executive Officer at NPF, David Bakelman. “Now, we can enable greater collaboration amongst researchers and our foundation, improve the quality of patient care, and significantly impact outcomes for patients with pancreatic disease.”
Visit NPF.SEQSTER.COM to register today.
Until now registries did not have access to longitudinal patient data that is true Real World Data. With the SeqsterOS, the patients are engaged in the study and are able to see all of their health history in one private and secure location, while researchers can benefit from consented de-identified data that streams in real-time. NPF is executing on its mission to improve the quality of patient care, and significantly impact outcomes for patients with pancreatic disease by giving each patient the ability to connect, own and share their data.
The registry will put real-world patient data in the hands of cutting-edge researchers who are working tirelessly to improve care and develop new and improved therapies for individuals suffering from pancreatic disease.
“There is no better conference than DDW for NPF to announce their patient registry powered by SeqsterOS,” exclaimed Ardy Arianpour, CEO & Co-Founder of Seqster. “The NPF registry with SeqsterOS tackles traditional hurdles faced by patient registries from two angles: nationwide interoperability and patient engagement. Without these two elements, a patient-matched longitudinal health record that streams in to enable effective research is not possible. We are excited that NPF had the vision to select SeqsterOS to empower their patients, caregivers, and researchers and accelerate pancreatic disease research while better managing their health.”
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